AUTISM. Dr.P.SUMITHA HEMAVATHY Medical Director-CAPAAR

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1 AUTISM What every Parents Need to Know Dr.P.SUMITHA HEMAVATHY Medical Director-CAPAAR

2 What is Autism A u t i s m i s a g e n e r a l t e r m u s e d t o d e s c r i b e a g r o u p o f c o m p l e x n e u r o - d e v e l o p m e n t a l d i s o r d e r s a l s o k n o w n a s P e r v a s i v e D e v e l o p m e n t a l D i s o r d e r s ( P D D ) o r A u t i s m S p e c t r u m D i s o r d e r s ( A S D ). T h e s e d i s o r d e r s a r e c h a r a c t e r i z e d, i n v a r y i n g d e g r e e s, b y c h a l l e n g e s r e l a t e d t o : C o m m u n i c a t i o n S o c i a l I n t e r a c t i o n R e s t r i c t i v e o r r e p e t i t i v e b e h a v i o r s a n d i n t e r e s t s P e o p l e w i t h a u t i s m m a y a l s o e x p e r i e n c e o t h e r d i f f i c u l t i e s i n c l u d i n g m e d i c a l i s s u e s, d i f f e r e n c e s i n c o o r d i n a t i o n a n d m u s c l e t o n e, s l e e p d i s t u r b a n c e s, a l t e r e d e a t i n g h a b i t s, a n x i e t y o r d i s o r d e r e d s e n s o r y p e r c e p t i o n s.

3 Causes of Autism

4 What Causes Autism? N o t l o n g a g o, t h e a n s w e r t o t h i s q u e s t i o n w o u l d h a v e b e e n w e h a v e n o i d e a. R e s e a r c h i s n o w d e l i v e r i n g t h e a n s w e r s. W e n o w k n o w t h a t t h e r e i s n o o n e c a u s e o f a u t i s m j u s t a s t h e r e i s n o o n e t y p e o f a u t i s m. O v e r t h e l a s t f i v e y e a r s, s c i e n t i s t s h a v e i d e n t i f i e d a n u m b e r o f r a r e g e n e c h a n g e s, o r m u t a t i o n s, a s s o c i a t e d w i t h a u t i s m. A s m a l l n u m b e r o f t h e s e a r e s u f f i c i e n t t o c a u s e a u t i s m b y t h e m. M o s t c a s e s o f a u t i s m, h o w e v e r, a p p e a r t o b e c a u s e d b y a c o m b i n a t i o n o f a u t i s m r i s k g e n e s a n d e n v i r o n m e n t a l f a c t o r s i n f l u e n c i n g e a r l y b r a i n d e v e l o p m e n t. A l t h o u g h a u t i s m a p p e a r s t o h a v e i t s r o o t s i n v e r y e a r l y b r a i n d e v e l o p m e n t, t h e m o s t o b v i o u s s i g n s a n d s y m p t o m s t e n d t o e m e r g e b e t w e e n t w o a n d t h r e e y e a r s o f a g e. O f t e n p a r e n t s a r e t h e f i r s t t o n o t i c e t h a t t h e i r c h i l d i s s h o w i n g u n u s u a l b e h a v i o r s s u c h a s f a i l i n g t o m a k e e y e c o n t a c t, n o t r e s p o n d i n g t o h i s o r h e r n a m e o r p l a y i n g w i t h t o y s i n u n u s u a l, r e p e t i t i v e w a y s. S o m e t i m e s a n a u t i s m s p e c t r u m d i s o r d e r i s d i a g n o s e d l a t e r i n l i f e, o f t e n i n r e l a t i o n t o l e a r n i n g, s o c i a l o r e m o t i o n a l d i f f i c u l t i e s.

5 What s Different About People with Autism? T h i n g s t h a t m a y m a k e a p e r s o n w i t h a u t i s m d i f f e r e n t c a n a l s o b e s e e n a s e x c e p t i o n a l a b i l i t i e s. I t i s i m p o r t a n t t o t h i n k o f h i m o r h e r a s i n t e l l i g e n t, e v e n i f l a n g u a g e o r b e h a v i o r a l d i f f i c u l t i e s d o n o t r e v e a l t h i s i n t h e w a y y o u e x p e c t. C h a r a c t e r i s t i c s o f s o m e o n e w i t h a u t i s m c a n b e s e e n a s b o t h c h a l l e n g e s a n d s t r e n g t h s. F o r e x a m p l e, a c h i l d w h o s e e m s i n f l e x i b l e o r r i g i d m a y a l s o b e t h e o n e w h o i s t h e b e s t a t f o l l o w i n g t h e r u l e s o f y o u r p r o g r a m. P e o p l e w i t h a u t i s m m a y d i s p l a y s o m e o r a l l o f t h e s e c h a r a c t e r i s t i c s : D i f f i c u l t y u n d e r s t a n d i n g l a n g u a g e, g e s t u r e s a n d / o r s o c i a l c u e s L i m i t e d o r n o s p e e c h W h e n t h e r e i s s p e e c h, i t c a n b e r e p e t i t i v e o r r e l a t e p r i m a r i l y t o o n e p a r t i c u l a r t o p i c L i m i t e d o r n o e y e c o n t a c t D i f f i c u l t y p a r t i c i p a t i n g i n b a c k - a n d - f o r t h c o n v e r s a t i o n s o r i n t e r a c t i o n s S o c i a l a w k w a r d n e s s I n t e n s e i n t e r e s t i n u n u s u a l t o p i c s o r o b j e c t s

6 What s Different About People with Autism? R e p e t i t i v e b e h a v i o r s, s u c h a s p a c i n g o r l i n i n g t h i n g s u p, s p i n n i n g, h a n d f l a p p i n g o r r o c k i n g S e n s i t i v i t y t o l i g h t, s o u n d, s m e l l, t a s t e o r t o u c h A b n o r m a l f e a r s a n d / o r l a c k o f a p p r o p r i a t e f e a r f o r r e a l d a n g e r s D i f f i c u l t y m a n a g i n g t r a n s i t i o n s, c h a n g e s i n r o u t i n e, s t r e s s a n d f r u s t r a t i o n S t r o n g v i s u a l s k i l l s G o o d r o t e l e a r n i n g a n d l o n g - t e r m m e m o r y s k i l l s ( m a t h f a c t s, s p o r t s s t a t i s t i c s, e t c. ) A d h e r e n c e t o t h e r u l e s H o n e s t y I n t e n s e c o n c e n t r a t i o n o r f o c u s, e s p e c i a l l y o n a f a v o r i t e a c t i v i t y A b i l i t y t o u n d e r s t a n d a n d r e t a i n c o n c r e t e c o n c e p t s a n d p a t t e r n s S t r o n g i n t e r e s t a n d / o r a b i l i t y i n m a t h e m a t i c s, t e c h n o l o g y, m u s i c a n d a r t

7 Tips for Communication with People with Autism

8 Tips for Communication with People with Autism S p e a k c a l m l y. U s e d i r e c t, c o n c r e t e p h r a s e s. I n s t r u c t i o n s s h o u l d c o n t a i n n o m o r e t h a n t w o s t e p s. A l l o w e x t r a t i m e f o r t h e p e r s o n t o r e s p o n d. A v o i d u s i n g p h r a s e s t h a t h a v e m o r e t h a n o n e m e a n i n g, l i k e c u t i t o u t. A v o i d t o u c h i n g. I f n e c e s s a r y, g e s t u r e o r g e n t l y g u i d e t h e p e r s o n.

9 Tips to Support Children with AUTISM

10 Tips to Support Children with Autism in Youth Programs: Be Welcoming and Supportive M e e t t h e c h i l d w h e r e h e i s a n d l e a r n f r o m h i m. R e s p e c t h i m a s a n i n d i v i d u a l. D o n o t t a l k a b o u t h i m i n h i s p r e s e n c e a s i f h e i s n t t h e r e. S e t c l e a r e x p e c t a t i o n s a n d b o u n d a r i e s. B e c o n s i s t e n t. D e v e l o p a n d i m p l e m e n t s t r u c t u r e. P r a c t i c e a n d p r o v i d e r e p e t i t i o n t o h e l p w i t h u n d e r s t a n d i n g a n d t o b u i l d s k i l l s. E x p e c t g r o w t h. K e e p y o u r s t a n d a r d s h i g h.

11 Tips to Support Children with Autism in Youth Programs: Develop Strategies to Compensate for Challenges O f f e r p r e f e r r e d s e a t i n g o r p l a c e m e n t a n d a l l o w f o r a d d i t i o n a l r e s p o n s e t i m e. P r o v i d e o r g a n i z a t i o n a l s u p p o r t s l i k e w r i t t e n s c h e d u l e s, l i s t s, v i s u a l c u e s, a n d s p e c i f i c v e r b a l d i r e c t i o n s. B e a w a r e o f a c h i l d s s e n s o r y n e e d s. A v o i d o r p r e p a r e f o r t r i g g e r s l i k e f i r e a l a r m s. G i v e b r e a k s f o r s e l f - r e g u l a t i o n. W i t h s m a l l s t e p s a n d s u p p o r t s, a l l o w t h e p a r t i c i p a n t t o e x h i b i t s u c c e s s. R e w a r d w h a t y o u w a n t t o s e e w i t h p o s i t i v e r e i n f o r c e m e n t

12 Tips to Support Children with Autism in Youth Programs: Educate and Communicate E d u c a t e o t h e r y o u t h p a r t i c i p a n t s a b o u t a u t i s m. P r o m o t e a c c e p t a n c e a n d u n d e r s t a n d i n g a m o n g p e e r s a n d s t a f f. S u p p o r t s o c i a l d e v e l o p m e n t w i t h r o l e - p l a y i n g, m o d e l i n g, a n d r e w a r d s. M a k e s u r e t o i n c l u d e t y p i c a l p e e r s. C o m m u n i c a t e w i t h f a m i l y m e m b e r s a n d c a r e g i v e r s. A s k q u e s t i o n s a n d s h a r e w h a t w o r k s. P r o b l e m s s o l v e w h a t i s n t w o r k i n g. A l w a y s k e e p l e a r n i n g a n d b e c r e a t i v e.

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