PAPER MOBILE CAMPAIGN Prject Guide Raising funds fr The Marfan Fundatin s prgrams and services
The Marfan Fundatin Paper Mbile Campaign 1 INTRODUCTION Yu can help peple living with Marfan syndrme and related disrders have a brighter future by raising funds fr The Marfan Fundatin s prgrams and services. Fundraising events als have an added benefit; they help raise awareness f these cnditins and, fr many peple, this can be life-saving. The mre peple wh knw abut Marfan syndrme and related disrders in the medical cmmunity and the general public, the mre likely peple wh have it will receive a prper diagnsis and prper medical care. The mst pwerful way we can raise funds and awareness is thrugh yu ur vlunteers. Yu are ur champins. Yur circles f relatives, friends, c-wrkers, and neighbrs, yur knwledge, yur persnal jurney, and yur cmmitment cannt be matched by anyne utside f ur cmmunity. One way yu can help is by setting up a Paper Mbile Campaign. This guide explains hw the campaign wrks and walks yu thrugh the steps t set it up. The Paper Mbile Campaign is an easy way t raise funds and awareness f Marfan syndrme and related disrders. All yu have t d is present the fundraiser t lcal stres, restaurants, and ther businesses. Ask the stre wner r manager if they are willing t ask their custmers fr at least a $1 dnatin and hang up a paper mbile with the dnr s name n it each time a cntributin is made. This raises awareness and shws supprt fr The Marfan Fundatin. If yu have any questins alng the way, cntact us at: vlunteer@marfan.rg r 516-883-8712, ext. 138. THANK YOU we cannt advance ur missin withut yu! Jane Dnr Paper mbiles have space fr dnrs t write their names and are bund in pads f 50.
The Marfan Fundatin Paper Mbile Campaign 2 STEPS TO SUCCESS 1. Chse a lcatin r multiple lcatins The mst imprtant thing t lk fr in a lcatin is hw they can help yu raise the mst mney pssible. Here are sme tips: Chse a lcatin that is family wned and where yu can meet with a decisin-maker. There are sme crprate businesses r chain restaurants that might be interested in participating, but these establishments typically require crprate apprval r the apprval f a decisin-maker wh is nt n-site. It is pssible t btain crprate apprval, but it typically requires a lengthy applicatin prcess and must be cmpleted up t ne year in advance f the campaign. Chse a business that has a built-in cnsumer base; that is, repeat and lyal custmers. Here are sme suggestins fr businesses t apprach: Restaurants and bars Pizzerias, delis, and bagel stres Hair and nail salns Cnvenience stres Medical and dental ffices Banks Gyms and fitness centers 2. Get permissin Every lcatin requires yu t get permissin. T d this, yu need t identify a cntact persn r, mre imprtant, the decisin-maker at the lcatin. Next, visit, call, r email this persn and explain that yu are a vlunteer fr The Marfan Fundatin, a nnprfit rganizatin, and yu wuld like t set up a fundraiser. Share the sample letters (attached) and find ut if there is anything specific yu need t d t such as cmplete an applicatin t secure permissin. Nt sure hw t ask? Start with why the campaign matters. Share yur persnal stry r jurney with Marfan syndrme r a related disrder r tie yur lcal campaign t smene in the cmmunity smene wh has Marfan syndrme r smene wh was lst t Marfan syndrme. If yu can shw why supprting the Fundatin is imprtant t yur cmmunity, yu are mre likely t get the apprval yu are lking fr. If yu are turned dwn fr the campaign, dn t be discuraged. Ask fr a dnatin in lieu f participatin and mve n t ask anther business.
The Marfan Fundatin Paper Mbile Campaign 3 3. Explain the lgistics f yur fundraiser It is up t yu t explain the lgistics t yur cntact persn at the businesses that agree t participate. Yur gal shuld be t make it as easy as pssible fr them t supprt the campaign and make it successful. Ask lcatins that agree t participate t set and meet a gal f $100 r mre. The paper mbiles are usually hung fr dnatins f $1 each. A stre might decide t ask fr mre depending n their average sale r t reach their fundraising gal faster. Fr instance, an upscale hair saln culd request a $5 dnatin per mbile, while a lcal deli might ask fr $1 per mbile. Fr their cntributin, custmers write their name n a mbile that is then hung in the stre. Determine hw lng the business is ging t ask fr dnatins. We suggest at least 2-4 weeks. While February is Marfan Awareness Mnth and a perfect time, they can implement this campaign during any time f year. Ask the manager t make sure that cashiers ask every custmer t make a dnatin. Yu can even g a step further and ask if the business can create a prize structure fr the emplyees wh sell the mst paper mbiles during their shift, each week, r fr the full campaign (at the stre s expense). Hang up The Marfan Fundatin s Knw the Signs pster and display ur Knw the Signs pstcards near the check-ut cunter and ther high-traffic areas t prmte the campaign and raise awareness. Suggest that the business hangs all f the mbiles in a specified lcatin that shwcases the ppularity f the campaign and the number f peple wh dnated. 4. Schedule a start date and end date It is imprtant t wrk with yur cntact persn at each lcatin t establish a start date and end date fr the campaign. They may be able t advise yu n the best times fr their type f business, that is, the mnth when they have the mst custmers. Make sure t crdinate a deadline with them als s that yu can return n that date t cllect the mney raised r make arrangements t have them submit their cntributins directly.
The Marfan Fundatin Paper Mbile Campaign 4 5. Cllecting Dnatins There are many ways that businesses can accept dnatins. Be sure t define hw dnatins are tracked and cllected prir t the start f the campaign. Cash Simple and easy! Have cashiers cllect cash fr each dnatin. They can keep the cash dnatins in an envelpe in the cash register clearly designated fr The Marfan Fundatin. At the end f the campaign, the business shuld cnvert the cash t a check and mail t the address belw. Special Cashier Key In Have the manager create a special dnatin key fr the register and have cashiers use this key t ring-up dnatins and paper mbile sales. Then the manager can run a reprt at the cnclusin f the campaign t determine hw much was raised. Submit this amunt by check, made ut t The Marfan Fundatin, with the name f yur cmpany in the mem, t: The Marfan Fundatin Attn: Paper Mbile Campaign 22 Manhasset Avenue Prt Washingtn, NY 11050 6. Final Preparatins Order ur Event Kit which cntains all f the items t make yur paper mbile campaign successful, including a supply f paper mbiles, attentin-getting ballns, Knw the Signs windw psters, awareness pstcards, brchures and mre! 7. Get Started! Yu have permissin, yu have details in place... nw yu need dnatins! Make arrangements t have ur event kit sent directly t the establishment r deliver ur event kit in persn. If yu live nearby, ffer t help stre persnnel hang psters and display materials. Yu can als arrange t meet with emplyees and cnduct a brief kick-ff presentatin t explain the lgistics f the campaign and share yur Marfan stry and explain why this campaign is imprtant t yu. Generate interest and excitement, but keep it brief fr the best respnse frm emplyees. Thrughut the campaign, visit r call yur stres weekly t check n their prgress tward their gal and thank them fr their participatin. Be sure t reiterate hw imprtant it is that cashiers and emplyees interacting with the custmers are encuraging every custmer t make a cntributin.
The Marfan Fundatin Paper Mbile Campaign 5 Check in frequently with participating businesses t thank them fr their effrts, encurage them, and take pictures f the emplyees and the mbiles that have been hung already. Send the pictures t the Fundatin, alng with yur name and the name and lcatin f the business, and we will publicize yur effrts. See ur Vlunteer Phtgraphy Guidelines fr mre infrmatin and ideas. Maximize yur campaign by prmting it t peple in yur cmmunity thrugh email and scial media. Share pictures f the participating businesses (they will lve this) and encurage peple t supprt them and cntribute t yur campaign. Yu can als share infrmatin abut hw the campaign dnatins help yur family and thers with Marfan syndrme and related disrders. Send infrmatin abut yur campaign t us (publicity@marfan.rg) and we can als publicize in ur scial media.
The Marfan Fundatin Paper Mbile Campaign 6 TEMPLATE LETTER: BUSINESSES Dear Friend: I wuld like yu t cnsider hsting this year s Marfan Awareness Paper Mbile Campaign t supprt The Marfan Fundatin. Marfan syndrme is a life-threatening genetic disrder f the bdy's cnnective tissue. It affects the heart and bld vessels, the bnes and the eyes. Knwing the signs is the key t early and accurate diagnsis and life-saving treatment. The Marfan Fundatin creates a brighter future fr everyne affected by Marfan syndrme and related disrders, and wrks tirelessly t advance research, serve as a resurce fr families and healthcare prviders, and raise public awareness. This is imprtant t me and t peple in ur cmmunity because [add persnal stry and hw this campaign can help create a brighter future fr peple in yur cmmunity with the cnditin]. This campaign is successful because it: Fsters emplyee-custmer relatins while bsting emplyee mrale Creates an pprtunity t recgnize yur custmers and prmtes gd will Enables yur staff t take pride in reaching a gal and giving back t the cmmunity Here s hw it wrks: Upn agreeing t hst the campaign, please sign and return the agreement letter t me at [email address]. I will deliver all necessary supplies fr the campaign. There is n cst t yu r yur business. Supplies include paper mbiles (apprx. 7 x 7 each), Knw the Signs windw psters, and brchures with infrmatin n Marfan syndrme and related disrders. The Paper Mbile Campaign can be held during any time perid that is cnvenient fr yu. (Please indicate yur campaign dates n the Agreement Frm.) Yur emplyees will ask each custmer t dnate at least $1 t The Marfan Fundatin. Yu can pt t request a higher dnatin fr each paper mbile; yu can elect t request mre based n yur custmer base and price pint fr yur prducts r services. Set yur wn fundraising gal! # Mbiles at $X each = $Gal Custmers sign their name n the mbile after making the required dnatin, then yur emplyees prminently display them in the designated area in yur business establishment.
The Marfan Fundatin Paper Mbile Campaign 7 At the end f the campaign, cnvert all cash t a check made payable t: The Marfan Fundatin. Yu may wish t add a cmpany dnatin, match yur custmer supprt, r make up the difference t meet yur fundraising gal. Please send yur check directly t the Fundatin: The Marfan Fundatin Attn: Paper Mbile Campaign 22 Manhasset Avenue Prt Washingtn, NY 11050 Please feel free t cntact me at [cntact inf] r cntact the Fundatin directly at 516-883-8712, ext. 138, r vlunteer@marfan.rg, with any questins. Thank yu fr yur cnsideratin. Sincerely, [yur name] The Marfan Fundatin Vlunteer
The Marfan Fundatin Paper Mbile Campaign 8 TEMPLATE LETTER: SCHOOLS Dear Friend: I wuld like yu t cnsider hsting this year s Marfan Awareness Paper Mbile Campaign t supprt The Marfan Fundatin. Marfan syndrme is a life-threatening genetic disrder f the bdy's cnnective tissue. It affects the heart and bld vessels, the bnes and the eyes. Knwing the signs is the key t early and accurate diagnsis and life-saving treatment. The Marfan Fundatin creates a brighter future fr everyne affected by Marfan syndrme and related disrders, and wrks tirelessly t advance research, serve as a resurce fr families and healthcare prviders, and raise public awareness. This is imprtant t me and t peple in ur cmmunity because [add persnal stry and hw this campaign can help create a brighter future fr peple in yur cmmunity with the cnditin]. This campaign is successful because it: Fsters student-cmmunity relatins while bsting schl mrale Creates an pprtunity t recgnize students and prmtes gd will Enables students t take pride in reaching a gal and giving back t the cmmunity Hw it wrks: Upn agreeing t hst the campaign, please sign and return the agreement letter t me at [email address]. I will deliver all necessary supplies fr the campaign. There is n cst t yu. Supplies include paper mbiles (apprx. 7 x 7 each), Knw the Signs windw psters, and brchures with infrmatin n Marfan syndrme and related disrders. Paper mbiles can be sld during any time perid that is cnvenient fr yu. (Please indicate yur campaign dates n the Agreement Frm.) Students will ask students, teachers, & parents t dnate at least $1 t The Marfan Fundatin. Set yur wn fundraising gal! # Mbiles at $X each = $Gal Students/Teachers will sign their name t the paper mbile and yu will prminently display them in yur schl. When the campaign is ver, cnvert all cash t a check made payable t: The Marfan Fundatin. Yu may wish t add a schl dnatin, match yur students effrts, r make up the difference t meet the schl gal.
The Marfan Fundatin Paper Mbile Campaign 9 I will either cllect yur dnatins at the cnclusin f the campaign r yu can send them directly t the Fundatin at the fllwing address: The Marfan Fundatin Attn: Paper Mbile Campaign 22 Manhasset Avenue Prt Washingtn, NY 11050 Please feel free t cntact me at [cntact infrmatin] r the Fundatin directly at 1-800-8-MARFAN, ext. 138 r vlunteer@marfan.rg, fr mre infrmatin. Thank yu fr yur cnsideratin. Sincerely, [yur name] The Marfan Fundatin Vlunteer
The Marfan Fundatin Paper Mbile Campaign 10 PAPER MOBILE AGREEMENT FORM Yes, my business/schl is willing t hst The Marfan Fundatin s Paper Mbile Campaign. Our fundraising gal is $ Business Name: Business Website: Cntact Name: Cntact Title: Phne: Email Address: Address: City, State, Zip: Campaign Dates: Vlunteer Name: The Marfan Fundatin 22 Manhasset Avenue Prt Washingtn, NY 11050 1-800-8-MARFAN ext. 138 Vlunteer@marfan.rg